Patient Privacy Notice
This notice explains how we collect, hold use data about you, if you are cared for by our services.
Read more about the data we process and store
What information do we collect about you?
We will likely hold the following basic personal information about you; your name, address, telephone numbers, date of birth, next of kin contacts and your GP details.
We might also hold your email address, marital status, occupation, overseas status, place of birth and preferred name or maiden name.
In addition to the above we may hold special category (sensitive) information about you which could include:
• Notes and reports about your health, treatment and care, including;
– your medical conditions
– results of investigations, such as x-rays and laboratory tests
– future care you may need
– personal information from people who care for and know you, such as relatives and health or social care professionals
– other personal information such as smoking status and any learning disabilities
• Your religion and ethnic origin
• Whether or not you are subject to any protection orders regarding your health, wellbeing and human rights (safeguarding status).
It is important for us to have a complete picture of you as this will assist staff to deliver appropriate treatment and care plans in accordance with your needs.
You are not obliged to provide personal information to Arthur Rank Hospice, however, as this information is required for us to provide you with our services, we will not be able to offer our services without it.
Where we collect your information
We will collect your information from:
- information you give us
- via Shared Care Record (health and social care partners including);
– local GP practices
– hospitals
– NHS 111
– community care
– mental health
– ambulance
– social care services
How we use your information
Your records are used to directly, manage and deliver healthcare to you to ensure that:
• The staff involved in your care have accurate and up to date information to assess and advise on the most appropriate care for you.
• Staff have information they need to be able to assess and improve the quality and type of care you receive.
• Appropriate information is available if you see another healthcare professional or are referred to a specialist or another social care or health provider.
The personal information we collect about you may also be used to:
• Remind you about appointments and send you relevant correspondence
• Review the care we provide to ensure it is of the highest standard and quality, e.g. through audit or service improvement
• Support the funding or your care, e.g. with commissioning orgnaisations
• Prepare statistics on our performance to meet the needs of the population or for the Department of Health and other regulatory bodies;
• Help to train and educate healthcare professionals
• Report and investigate complaints and claims
• Report events to the appropriate authorities when we are required to do so by law
• Review your suitability for research study or clinical trial
Our lawful basis for collecting and using your information
Article 6 of the GDPR and the DPA state, we must have a legal reason to collect, keep and use your data. We rely on the following legal basis.
perform a public task – a public body, such as an NHS organisation or Care Quality Commission (CQC) registered social care organisation, is required to undertake particular activities by law: GDPR Article 6 (1) (e)
For the processing of special category data, we rely on;
To provide and manage health or social care (with a basis in law): GDPR Article 9 (2) (h) See Annex 1 for the most likely laws that apply when using and sharing information in health and care.
Sharing your information
We may need to share relevant personal information with other health care organisations. We are part of My Care Record, an approach to improving care by joining up health and care information. Health and care professionals from other services will be able to securely view information from the records we hold about you when it is needed for your care. (Please see mycarerecord.org.uk for more information).
You can opt out, or opt back in again, at any time of sharing via My Care Record.
• To opt out online or find out more, visit Make your choice.
• If you choose this opt-out, NHS England and other health and care organisations will not be able to share any of your personal data with other organisations for research and planning, except in certain situations. For example, when required by law.
• If you want to check if you have opted out, you can enter your details again at Make your choice or check your settings in the NHS App.
We may share your information for healthcare purposes with health authorities such as NHS England, Public Health England, NHS trusts, general practitioners (GPs), ambulance services, primary care agencies, etc. We will also share information with parts of the NHS and those contracted to provide services, social services, other hospices and private care homes to support your healthcare needs.
There are occasions where Arthur Rank Hospice is required by law to share information provided to us. This includes, but is not limited to, disclosure under a court order, sharing with the Care Quality Commission for inspection purposes, the police for the prevention or detection of crime or where there is an overriding public interest to prevent abuse or serious harm to others and other public bodies.
How we protect your information
We adopt appropriate data collection, storage, and processing practices, including the use of multifactor authentication for remote access, to safeguard your personal and transactional data from unauthorised access, alteration, disclosure, or destruction on our website and systems.
We have security procedures, rules and technical measures in place to protect your data. Your data will be kept in a secure environment with access restricted on a need-to-know basis.
We do not use any suppliers outside of the European Economic Area, if we were to enlist trusted suppliers who operate outside of the EEA, we would only share personal information if we were satisfied they have sufficient protections in place and they are complying with the applicable privacy laws.
Your rights
The law gives you several rights to control your personal data when it is used by us:
The right to be informed – this privacy notice is part of your right to be informed
The right of access
The right to rectification
The right to erasure
The right to restrict processing
The right to data portability
The right to object
Rights in relation to automated decision making and profiling.
How long we keep your data
We will keep your information for as long as required to enable us to operate our services, but we will not keep your information for any longer than is necessary. We will take into consideration our legal obligations when determining how long we should retain your information. When we no longer need to retain your information, we will ensure it is securely disposed of, in line with our Data Retention Schedule.
Cookies and tracking
The Arthur Rank Hospice website uses cookies to improve your experience while you navigate through the website. Out of these cookies, the cookies that are categorised as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyse and understand how you use this website.
These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may influence your browsing experience.